Now that life is so busy, I have been posting very infrequently. I wanted to let you know that my recovery from MCS (Multiple Chemical Sensitivities) is still progressing well.
A few weeks ago I got my hair cut in a hair salon for the first time since before MCS got severe in 2004!
It felt like a huge milestone on my healing journey. No mask of course. :-)
Here's a picture I took before going in:
I brought my own shampoo and conditioner but other than that, I made no accommodations at all to MCS.
There were people around me getting highlights and it was wonderful to be able to just relax, knowing that my body can handle that kind of exposure now, with no ill effects.
My appointment took 1 hour and 15 minutes because my hair is very thick and long.
I wore their cape, sat in their chair, was surrounded by the products used by the salon... and I was just fine. :-) No reactions while there or afterward!
It was so exciting to feel so 'normal' and be able to do a positive, self-esteem boosting thing like getting a nice hair cut.
For those who are not at this stage yet, and want a hair cut, many towns have hairdressers who make house calls for people who are less mobile. It generally isn't advertised. I have found that service by calling various hair dressers or seniors residences and asking if anyone has heard of someone who gives cuts at your house. If you have a yard or balcony, they should be able to do the cut outside so that you don't need to bring them into your home (if you would react to scents on them).
If you are lucky enough to live in a city that has an eco-friendly or chemical-free hair salon, they may be an option for you. Check out this great article about that type of salon on Planet Thrive here: Less Toxic Hair Salons
Showing posts with label return to health. Show all posts
Showing posts with label return to health. Show all posts
June 29, 2012
February 1, 2012
Others Who Have Recovered Or Are Healing From MCS
Hello! I haven't posted in a very long time and I want to let you all know that MCS is still improving. I ride the bus regularly, go in any store I want, walk through the perfume or scented candle sections of big department stores, eat at restaurants (with some limitations due to food sensitivities still), attend appointments and socialise all without a mask!
I can also use 99% of public washrooms without a mask.
There are now so many others who are also healing or fully recovered that I've felt less pressure to post here since the internet is now rich with inspiring stories of hope and healing from MCS.
I invite you to check out a new page I've put up on my blog with a list of some of those who are healing along with some links to their success stories.
It has been so encouraging and inspiring to see the numbers of people who are healing from MCS grow over the years.
It is my belief that for every story shared on the internet, there are many more who have not created blogs or websites. So each of the people I list below stands, in my mind, for many more!
Some of these people have healed 100% and are living lives unhindered by reactions to chemicals! Others are in the process of healing and have had dramatic improvements, able to handle exposures that previously would have been devastating... and, importantly, have not experienced backsliding or relapse after these exposures.
Click here to read more:
Other stories of healing and recovery from MCS
I can also use 99% of public washrooms without a mask.
There are now so many others who are also healing or fully recovered that I've felt less pressure to post here since the internet is now rich with inspiring stories of hope and healing from MCS.
I invite you to check out a new page I've put up on my blog with a list of some of those who are healing along with some links to their success stories.
It has been so encouraging and inspiring to see the numbers of people who are healing from MCS grow over the years.
It is my belief that for every story shared on the internet, there are many more who have not created blogs or websites. So each of the people I list below stands, in my mind, for many more!
Some of these people have healed 100% and are living lives unhindered by reactions to chemicals! Others are in the process of healing and have had dramatic improvements, able to handle exposures that previously would have been devastating... and, importantly, have not experienced backsliding or relapse after these exposures.
Click here to read more:
Other stories of healing and recovery from MCS
October 22, 2011
Cutting The Grass With MCS (and video)
I made this short video of myself cutting my grass to give hope to others with MCS - to show that healing is possible :)
Click this link to view the video on Youtube: http://www.youtube.com/watch?v=-d0SttND4DU
I didn't want to embed it and make my dial-up reader's computers freeze! :-)
Just a few years ago, I had MCS badly enough that if anyone near my house cut their lawn, I had to instantly close the windows, couldn't go outside etc for at least that whole day (or as long as the terpenes were in the air - sometimes a few days). After my partner cut our lawn, he had to remove his clothing except underwear out on the deck before coming in (including socks and shoes) and have a shower right away. I still reacted to the amount of grass terpenes on him from him walking through to the shower.
NOW... I can cut the grass myself with no mask!
I've been healing steadily from MCS for a little over 3 years and cut grass began to smell good to me about 1 year into the healing. Then I was able to cut the lawn with a mask and remove my clothing and shower.
I have been able to cut the grass with no mask and no need to change clothing or shower for the last year or so but finally videotaped it.
Healing is possible and I hope that, as more and more of us heal and share our stories, people who are new to MCS will begin the journey from a place of hope, inspired by the possibilities they see in others.
Click this link to view the video on Youtube: http://www.youtube.com/watch?v=-d0SttND4DU
I didn't want to embed it and make my dial-up reader's computers freeze! :-)
Just a few years ago, I had MCS badly enough that if anyone near my house cut their lawn, I had to instantly close the windows, couldn't go outside etc for at least that whole day (or as long as the terpenes were in the air - sometimes a few days). After my partner cut our lawn, he had to remove his clothing except underwear out on the deck before coming in (including socks and shoes) and have a shower right away. I still reacted to the amount of grass terpenes on him from him walking through to the shower.
NOW... I can cut the grass myself with no mask!
I've been healing steadily from MCS for a little over 3 years and cut grass began to smell good to me about 1 year into the healing. Then I was able to cut the lawn with a mask and remove my clothing and shower.
I have been able to cut the grass with no mask and no need to change clothing or shower for the last year or so but finally videotaped it.
Healing is possible and I hope that, as more and more of us heal and share our stories, people who are new to MCS will begin the journey from a place of hope, inspired by the possibilities they see in others.
September 12, 2011
Author Recovers From MCS Using Brain Retraining
Els Valkenburg is the author of the book Understanding Multiple Chemical Sensitivity and I am so happy to know of her healing from MCS!
You can read very helpful detailed questions and answers on Els' website here: MCS Recovery
It's very inspiring reading :-)
Els healed using the Gupta Amygdala Retraining Programme, a DVD program that many with MCS are using and reporting improvements from.
A big thank you to Julie from Planet Thrive for sharing this wonderful recovery story. You are a gift to our community Julie ☺
You can read very helpful detailed questions and answers on Els' website here: MCS Recovery
It's very inspiring reading :-)
Els healed using the Gupta Amygdala Retraining Programme, a DVD program that many with MCS are using and reporting improvements from.
A big thank you to Julie from Planet Thrive for sharing this wonderful recovery story. You are a gift to our community Julie ☺
September 4, 2011
Woodsmoke Success Story
Woodsmoke used to be the bane of my existence (or at least near the top of the list).
I won't stress you out with the details of just how sensitive I was to it and how much I reacted. Basically - very, very much.
The reactions and degree of sensitivity have been improving over the last few years to the point that it has made my life a lot easier - especially living in a neighbourhood where a number of people heat with wood from October to April and many more have fires in their yards the rest of the year.
Yesterday I had my biggest wood smoke exposure so far and did so well!
I was gardening at a friends house for 2 hours. We had agreed to trade garden in barter for a healing service she offers so I had a specific 2 hours scheduled.
I began weeding in the area she directed me to and within a few minutes, the neighbour started a fire about 12 feet away from me on the other side of a chain link fence. My initial reaction was very stressed because even though woodsmoke has bothered me less for a while, I still choose to remove myself from it's presence if it's very strong. I didn't know how I would react.
It was great! I disliked the smoke but didn't react physically or emotionally (one the ways I used to always react to woodsmoke was intense, sudden anger). I continued gardening for the full 2 hours with woodsmoke wafting through the yard - at times enough to make the air visibly smoky. In addition, the neighbour was periodically smoking a cigarette. I didn't have any reactions to either.
I did have a bath when I got home many hours later but didn't bother washing my hair and was able to sleep the entire night with no reaction and wake up feeling good. I can still smell the smoke in my hair today and am fine with it!
For me, this is a huge success and I wanted to share it here with you.
Healing is possible :-)
I won't stress you out with the details of just how sensitive I was to it and how much I reacted. Basically - very, very much.
The reactions and degree of sensitivity have been improving over the last few years to the point that it has made my life a lot easier - especially living in a neighbourhood where a number of people heat with wood from October to April and many more have fires in their yards the rest of the year.
Yesterday I had my biggest wood smoke exposure so far and did so well!
I was gardening at a friends house for 2 hours. We had agreed to trade garden in barter for a healing service she offers so I had a specific 2 hours scheduled.
I began weeding in the area she directed me to and within a few minutes, the neighbour started a fire about 12 feet away from me on the other side of a chain link fence. My initial reaction was very stressed because even though woodsmoke has bothered me less for a while, I still choose to remove myself from it's presence if it's very strong. I didn't know how I would react.
It was great! I disliked the smoke but didn't react physically or emotionally (one the ways I used to always react to woodsmoke was intense, sudden anger). I continued gardening for the full 2 hours with woodsmoke wafting through the yard - at times enough to make the air visibly smoky. In addition, the neighbour was periodically smoking a cigarette. I didn't have any reactions to either.
I did have a bath when I got home many hours later but didn't bother washing my hair and was able to sleep the entire night with no reaction and wake up feeling good. I can still smell the smoke in my hair today and am fine with it!
For me, this is a huge success and I wanted to share it here with you.
Healing is possible :-)
July 13, 2011
New site exploring neural reconditioning for MCS, CFS, FMS and related illnesses
Gosh it's been 3 months since I've posted!
I've drastically lessened my time on the computer and it feels wonderfully freeing.
I hadn't realised just how much time I spent on here and it's so nice to be doing things I love that engage me more than the computer does.
I'm here today just very briefly to encourage you to check out an exciting new website called Limbic Retraining.
From their About page: "This blog is meant to be a clearinghouse for those interested in exploring the potential of brain exercises based on the concept of neural plasticity to heal chronic fatigue syndrome/myalgic encephalomyelitis, fibromyalgia, chemical and electrical sensitivity, post-traumatic stress disorder, anxiety, and related conditions. We will post articles, web resources, and other information to help keep you on top of the latest developments in this exciting field. Sign up for email notifications to be the first to know about new posts on our site."
Visit http://limbicretraining.com/about/ to read more!
Site Sections:
Home About FAQs Reading List Brain Nourishment Support Research
I've drastically lessened my time on the computer and it feels wonderfully freeing.
I hadn't realised just how much time I spent on here and it's so nice to be doing things I love that engage me more than the computer does.
I'm here today just very briefly to encourage you to check out an exciting new website called Limbic Retraining.
From their About page: "This blog is meant to be a clearinghouse for those interested in exploring the potential of brain exercises based on the concept of neural plasticity to heal chronic fatigue syndrome/myalgic encephalomyelitis, fibromyalgia, chemical and electrical sensitivity, post-traumatic stress disorder, anxiety, and related conditions. We will post articles, web resources, and other information to help keep you on top of the latest developments in this exciting field. Sign up for email notifications to be the first to know about new posts on our site."
Visit http://limbicretraining.com/about/ to read more!
Site Sections:
Home About FAQs Reading List Brain Nourishment Support Research
August 28, 2010
Week-long Trip A Huge Success - MCS so much better!
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| Glorious view from the scenic Taconic State Parkway - the photo doesn't do it justice. |
I am back from a wonderful week long trip to New York State.
I will write a review of the Rhinebeck campus of the Omega Institute from an MCS perspective soon but if you'd like to read a bit sooner, you can view this post on my art-focused blog: Back From Omega Institute Retreat - Wonderful!
The trip was a huge success for me from an MCS standpoint. I am so excited to have been able to go on such a big journey and not get sick! It was totally liberating and joyful to interact with all sorts of people as myself instead of as a) a sick person or b) a person wearing a mask.
After returning home, I realised that I had spent time with people, enjoyed their company and not even thought of mentioning MCS to them! It was/is SO COOL!
I will also be writing a review of the Bed and Breakfast I stayed at on the way there and back. They are more MCS aware than most (though they have many areas they could improve).
Since returning I have no desire at all to sit in front of the computer so it may take me a while to get to those reviews.
The air here is whispering of autumn and I want to be outside in it!
| Drawing done at Omega after an Energy Medicine healing session |
August 11, 2010
I'm Going On A Trip!
I'm very excited to have healed enough that traveling is now possible!
I am going to the Omega Institute next week (I wrote a bit more about it on my other blog here).
On the way there and back I will be staying for one night at a Bed and Breakfast that is MCS aware. It has been used by patients of Dr. Sherry Rogers. I will post a review of both the B&B and the Omega Institute some time after I get back.
I'm also working on a post that has tips on having an MRI when you have MCS (I had 2 in June). Writing is slow this summer so I'm not sure when these posts will happen but hopefully soon!
My summer is going well so far. I am loving spending time in my gardens and morning walks and bicycling.
I am happy to be able to bike in traffic without reacting and ride on city buses!
I hope you are doing things you enjoy this summer!
:-)
March 29, 2010
MCS Improvements Part 10: 3 Days of Outings
I find that my improvements are becoming something I'm used to and I want to make sure I keep posting them to keep track of the kinds of things I can do now and be okay.
During these exposures I sometimes feel tired or spaced out but am still functional.
*note* I get hormonal migraines and so there's about one week in the month when I try not to do 3 days in a row like this or it's more likely I will get a migraine.
Friday
Sunday
All of this was with no mask except for a few minutes at the bus stop when I held it to my face while someone smoked a cigarette.
The really neat thing about this is that it was 3 days in a row - I used to have very long recovery times but now they are generally very fast and I can go out the next day again.
During these exposures I sometimes feel tired or spaced out but am still functional.
*note* I get hormonal migraines and so there's about one week in the month when I try not to do 3 days in a row like this or it's more likely I will get a migraine.
Friday
- spent 4 hours waiting in a free tax clinic at the local community centre
- walked to and from the centre (I'm slowly building up my exercise tolerance)
- went for walk in some woods in town
- went for non-organic dinner at Mexican restaurant
- went shopping at large chain grocery store for about an hour and a half
Sunday
- took city bus... BUS! (actually 2 buses) to small book sale at a cafe. Coffee fumes used to knock me flat in minutes. This is a photo I actually took on the bus (on a different day). You can see I'm sitting near people.

- browsed books, used bathroom twice (reed fragrance oil diffuser)
- ordered delicious creamed vegetable and curry soup, sat for an hour drawing
- went next door to a used book store, browsed for 30 minutes
- got ride to Giant Tiger (kind of like a cross between a teensy Walmart and a dollar store - very stinky) shopped for about 45 minutes
All of this was with no mask except for a few minutes at the bus stop when I held it to my face while someone smoked a cigarette.
The really neat thing about this is that it was 3 days in a row - I used to have very long recovery times but now they are generally very fast and I can go out the next day again.
March 3, 2010
MCS Healing Tools: Shifting Focus
One of the most valuable tools on my healing journey from chronic illness has been a willingness to shift my attitude and focus.
The process that has worked best for me goes something like this:
This may seem extremely simplistic or sound like those irritating people who tell us to 'think positive' but it has done wonders for me on my healing journey.
There is a real mind/body connection - and not in a 'new-agey' sense.
When we do things that feed our joy, a whole bunch of positive things happen physiologically in our bodies - making them much more able to heal or deal with stressors, exposures etc.
When we feed our pain, a whole bunch of negative things happen in the body - encouraging illness.
I have read that when we simply think of doing something, similar things happen in the brain and body. So if we cannot actually DO the things that bring us joy, merely thinking of doing them can have wonderful physical effects - not to mention the great effect on our mood!
A critical part of Shifting Focus is avoiding thoughts that have what I call 'negative hooks'.
I have written more about this, including some more detailed instructions, in this post: Technique to Tap the Healing Power of Love
I'd love to hear what brings you joy to do or think of!
Please feel free to share in the comments area.
☺
The process that has worked best for me goes something like this:
- Find things that bring me joy to do or think about (gardening, art, cats, nature)
- Do them as often as I can
- When I can't do them, think of doing them - imagine and envision it as richly as I can
- Note what does not bring me joy (thinking about MCS stuff, limitations)
- Refrain from doing or thinking about it whenever possible
- When I notice myself thinking about something that doesn't bring me joy, STOP
- ... and consciously choose to think about (or better yet do) one of the things that does bring me joy
This may seem extremely simplistic or sound like those irritating people who tell us to 'think positive' but it has done wonders for me on my healing journey.
There is a real mind/body connection - and not in a 'new-agey' sense.
When we do things that feed our joy, a whole bunch of positive things happen physiologically in our bodies - making them much more able to heal or deal with stressors, exposures etc.
When we feed our pain, a whole bunch of negative things happen in the body - encouraging illness.
I have read that when we simply think of doing something, similar things happen in the brain and body. So if we cannot actually DO the things that bring us joy, merely thinking of doing them can have wonderful physical effects - not to mention the great effect on our mood!
A critical part of Shifting Focus is avoiding thoughts that have what I call 'negative hooks'.
I have written more about this, including some more detailed instructions, in this post: Technique to Tap the Healing Power of Love
I'd love to hear what brings you joy to do or think of!
Please feel free to share in the comments area.
☺
February 26, 2010
MCS Improvements Part 8: Walmart, mall, dollar store, library, Chapters, restaurant
I finally polished off this post and I'd like to share something very inspiring.
I recently went on a number of outings over 2 consecutive days that went SO well it was wonderful!
I was on a quest for unscented glue sticks (surprisingly hard to find) and got dropped off at Walmart (I don't drive). This is the 3rd time in a few months that I've done Walmart without a mask. I had to bold that because that's a statement I thought I'd never see!
After that, I walked through the mall and went to the library for a while and then walked 20 minutes home. By that time I was very tired because I'd been on my feet for over 2 hours and I am not in good shape due to little exercise.
But other than normal tiredness, I was totally fine MCS-reaction-wise.
So that's 2 days in a row of huge, hours-long, unmasked outings with few ill effects.
And I was fine the next day and the day after that etc.
Awesome :-)
I recently went on a number of outings over 2 consecutive days that went SO well it was wonderful!
I was on a quest for unscented glue sticks (surprisingly hard to find) and got dropped off at Walmart (I don't drive). This is the 3rd time in a few months that I've done Walmart without a mask. I had to bold that because that's a statement I thought I'd never see!
- The first time was a few months ago for about 45 minutes and although not terrible, was not good - really bad brain fog, then emotional breakdown later with unexplained sobbing and fatigue.
- The second time was a few months later - 15-20 minutes - and I had slight brain fog but was otherwise fine.
- The third time was last week and it went great. I was in there for at least 45 minutes, in all different departments, sniffing glue sticks of all things, and the only symptom was mild brain fog and feeling a bit overwhelmed. No fatigue or neuro reactions later.
After that, I walked through the mall and went to the library for a while and then walked 20 minutes home. By that time I was very tired because I'd been on my feet for over 2 hours and I am not in good shape due to little exercise.
But other than normal tiredness, I was totally fine MCS-reaction-wise.
I woke up the next day feeling fine - no chemical hangover - and ended up going out again!
I went for a nature walk, browsed in Chapters for at least an hour (large chain bookstore that carries scented candles and has a Starbucks in it - fumes) and had dinner at Swiss Chalet. The restaurant was so busy that I ended up being there for about 2 hours in total what with waiting in line, waiting to order, waiting for food to come and eating. I got a mild headache which left as soon as I ate - likely blood sugar-related. funky tree from walk!
So that's 2 days in a row of huge, hours-long, unmasked outings with few ill effects.
And I was fine the next day and the day after that etc.
Awesome :-)
February 8, 2010
MCS Improvements Part 7: Tolerating Markers, Pens and Papers
It's very exciting to now be able to use pretty much any pen or non-permanent marker!
I can now use sparkly pens, metallic pens, ball point pens, gel pens etc etc.Ball point pens in particular I never thought I would be able to use again and am now totally fine with.
I'm loving all the new colours that are opening up to me.
Being able to do more artistic things is increasing my energy and improving my mood... and it's SO healing for me!
You can view more creativity-focused posts on my blog Divinity Withinity.
January 20, 2010
MCS Improvements Part 6: Tracking Over 3 Months (3 dentist appts)
I had a neat opportunity to track improvements recently.
In 3 months, I went to the dentist 3 times - with each visit almost exactly one month apart.
The dentist is a number of hours away and each trip in total took over 8 hours at the shortest.
on the last 2 visits, I also went out for lunch at the same restaurant after the dentist.
I found it much easier to assess the level and rate of improvement with those visits compared to somewhere I go once or twice a week around town.
In Other Improvement News:
In other news, going out to stores, malls, etc with no mask is now the norm for me. I carry a mask in case I need to use a washroom that is ridiculously air freshenered but rarely use it.
The reactions from those 'out in public' places are lessening steadily and recovery time is almost instant after getting home.
It used to be that recovery time couldn't even start until I had showered and changed into clean clothing but now it begins the second I am in cleaner air.
In 3 months, I went to the dentist 3 times - with each visit almost exactly one month apart.
The dentist is a number of hours away and each trip in total took over 8 hours at the shortest.
on the last 2 visits, I also went out for lunch at the same restaurant after the dentist.
I found it much easier to assess the level and rate of improvement with those visits compared to somewhere I go once or twice a week around town.
Exposures:
same hours long drive there
in same newer, smelly vehicle
inhaling the same exhaust fumes
walking through the same parking garage,
air freshenered elevator,
cleaning producted bathroom,
chemical-filled dentist office,
scented serving person, carpeted restaurant
eating the same delicious but non-organic food
same hours long drive home
in same newer, smelly vehicle
inhaling the same exhaust fumes
Reactions:
with each trip my reactions were WAY less than the one before, my recovery time was faster (with trip 3 recovery time being none at all really because I pretty much didn't react all day!)
I should put that in it's own sentence.
I am improving fast enough that although Trip 1 felt like hell and Trip 2 still felt like an ordeal (though not a hellish one), Trip 3 produced pretty much NO negative reactions and therefore didn't require any recovery time.
I was slightly tired a bit after eating which happens to me anyway when I digest a large meal. I still disliked the various things I smelled but did not physically or cognitively react to them.
I also hade slightly sore shoulders which came up about 2 hours after getting home.
After finally washing perfume and etc fumes out of my hair that went away.
If someone had told me 3 years ago that this would ever be possible for me, I would not have believed them.
In Other Improvement News:
In other news, going out to stores, malls, etc with no mask is now the norm for me. I carry a mask in case I need to use a washroom that is ridiculously air freshenered but rarely use it.
The reactions from those 'out in public' places are lessening steadily and recovery time is almost instant after getting home.
It used to be that recovery time couldn't even start until I had showered and changed into clean clothing but now it begins the second I am in cleaner air.
December 22, 2009
Celebrating MCS Improvements Part 5: Healing Faster and Faster!
My improvements are happening very fast now.
Every week I seem to have things I can tolerate (or am reacting less to) that I could not just one week before. It's so exciting!
I have now had a number of weeks in a row where I have gone in public with no mask for hours at a time each week - often twice a week - and each time my reactions are less and less!
Last week I went for a medical appointment/exam in a regular clinic that took over 90 minutes total (including wait time) with no mask, then shopping for over 2-3 hours afterwards.
I did take a blanket for over the exam table and asked for a disposable paper robe instead of laundered one. I was bothered most by the flourescent lights - far more than by chemicals.
My reactions while out were mild and I recovered as fast as it took me to shower after getting home.
I recently went ot Walmart without a mask (something I thought would never happen).
It was not a pleasant experience but far better than it would have been in the past. I have been to Zellers (for non-Canadians that is like a small version of Walmart - not quite as stinky but still awful) many times maskless now and am fine. Haven't yet done harware stores.
Yesterday I was in various grocery stores for 2 hours, then in a MALL, amidst the holiday shopping craziness, for about an hour and a half, all with no mask.
I came home, showered, ate and was well enough to go out to a cafe that was having free tarot readings!
With these outings I get slight sore throat and slight brain fog and sometiems some fatigue but it all passes so fast and is SO mild compared to how it used to be. I used to have more symptoms than those and far worse. A few years ago an outing maskless even a fraction of that length would have had me sick for weeks or more. And each time I did one would have taken longer to recover.
My favourite thing is being able to smile at people :-)
:-)
November 16, 2009
Constitutional Homeopathy Update
For the past 10.5 months I've been trying constitutional homeopathy for MCS and overall health.
So far there are some really dramatic results - for the good.
There have been some old symptoms brought up and as I keep taking the remedy, I move through them and feel that my body is finally healing those issues - instead of just shoving them under the carpet and adding more symptoms as happened most of my life!
Constitutional homeopathy is highly specific and it is my belief that results depend on having a homeopath who is skilled and conscientious.
What I like best about this approach is that, "Constitutional prescribing is also aimed at eventual cure of the patient, not just suppression or relief of immediate symptoms."
I was lucky enough to get in as a client of a 4th year homeopathy student at a very low price and have stayed on with her since she has graduated.
There have been some great physical improvements (improved MCS all round is the best one) and a number of very profound emotional and spiritual differences.
My very mind set about some things has changed in ways I would have thought impossible.
One thing that has had a profound impact on me has been a shift in what time I feel like getting up in the morning. It used to feel torturous to get up any time before 9am (often any time before 10am). Now I wake up every day at around 5am, naturally, open the curtains so my body can sense that natural shift of light when dawn hits and go back to sleep until about 7am. And wake up, almost always before my alarm, feeling pretty alert and rested. At 7am!
7:00 a.m.
normal to many people, totally strange for me!
I used to never feel rested no matter how much I slept. I'd be dragging myself out of bed out of guilt or knowing how much worse insomnia would be the next night if I slept in further.
I used to need at least 9 hours of sleep to feel halfway human and now I can get anywhere between 7 and 8.5 hours and feel fine - often good!
I am going to have an appointment with the homeopath to try and figure out a remedy to take acutely when migraines happen.
I've got my fingers crossed!
:-)
So far there are some really dramatic results - for the good.
There have been some old symptoms brought up and as I keep taking the remedy, I move through them and feel that my body is finally healing those issues - instead of just shoving them under the carpet and adding more symptoms as happened most of my life!
Constitutional homeopathy is highly specific and it is my belief that results depend on having a homeopath who is skilled and conscientious.
What I like best about this approach is that, "Constitutional prescribing is also aimed at eventual cure of the patient, not just suppression or relief of immediate symptoms."
Quote taken from this article on constitutional homeopathy.
I was lucky enough to get in as a client of a 4th year homeopathy student at a very low price and have stayed on with her since she has graduated.
There have been some great physical improvements (improved MCS all round is the best one) and a number of very profound emotional and spiritual differences.
My very mind set about some things has changed in ways I would have thought impossible.
One thing that has had a profound impact on me has been a shift in what time I feel like getting up in the morning. It used to feel torturous to get up any time before 9am (often any time before 10am). Now I wake up every day at around 5am, naturally, open the curtains so my body can sense that natural shift of light when dawn hits and go back to sleep until about 7am. And wake up, almost always before my alarm, feeling pretty alert and rested. At 7am!
7:00 a.m.
normal to many people, totally strange for me!
I used to never feel rested no matter how much I slept. I'd be dragging myself out of bed out of guilt or knowing how much worse insomnia would be the next night if I slept in further.I used to need at least 9 hours of sleep to feel halfway human and now I can get anywhere between 7 and 8.5 hours and feel fine - often good!
I am going to have an appointment with the homeopath to try and figure out a remedy to take acutely when migraines happen.
I've got my fingers crossed!
:-)
September 13, 2009
Celebrating MCS Improvements Part 4: Going Maskless
It seems like a very long time since I have posted on the blog! I've been living in clean air in the woods for the summer and it's been so healing... but more about that another time :-)
I came across this old draft of a post I began writing back in January. It was so neat to read it again today and realise how much things have changed since then and I wanted to share.
*Note* There are many different kinds of 'masks' that people with MCS use. When I refer to a 'mask' I am talking about a small 'respirator' I wear that has a layer of activated carbon in it which can adsorb a certain amount of VOCs and chemicals. It is not tolerated by all due to the synthetic materials it is made from.
This is not one of the large respirators that have canister filters - they filter much more and are excellent for MCS from what I hear IF one can get them outgassed enough so as to not react to the respirator itself.

Here is the January 2009 post:
I now have a few select places I can go without a mask - something I thought would be forever impossible. Just yesterday I was out without mask and realised that it no longer felt terrifying like it did when I first began doing so (maybe a year ago).
I know my body and intuition well enough now to trust them. If I have the feeling that today is a mask day, then I wear my mask(s). If not, I try to trust that feeling too although it's a bit harder (scarier).
There are some places that I expect will be quite a while before I go unmasked. Grocery stores (the dreaded detergent aisle that contaminates the entire store), malls (have gone unmasked once), department stores, hardware stores, anywhere that has air 'freshener'.
Fast forward 9 months to September 2009:
I was so excited to read that old post because it is inspiring to realise just how FAST I am improving! it may feel like I am crawling along while I'm doing it, but things like this give me perspective. Only 9 months ago, I though it would be possibly years before I could go somewhere stinky like a mall or big grocery store.
I can now go to those 'dreaded' huge grocery stores, malls and department stores with no mask. (though I do not go down the aisles that have detergent, perfume, air fresheners - that would just be stupid ☺)
There are days when I can tell it would not be a good idea so I go masked but generally, I can now go those places unmasked with no lasting effects. I get a sore throat or nose - depending on whether I breathe through my mouth or nose - and I get varying degrees of brain fog still. Other than that, my reactions are almost none and my recovery time is almost immediate upon getting into clean air again.
Even one year ago, I would have a chemical 'hangover' for at least the following day if not longer. And that's if I went wearing a mask.
I can't imagine how bad it would have been without the mask. I know the recovery time was much longer if my mask was older and less effective at filtering out VOCs.
I waited a long time to post about this and here is why: people with MCS sometimes take risks like this when they are getting better and end up having it set them back.
I knew that some readers may be concerned I was taking a foolish risk. It's hard to communicate to anyone else what my relationship with my intuition is like and the decision to go places maskless could seem ridiculous and totally unsafe. I wanted to wait to post until a good deal of time had passed and I could say, with confidence, the following:
I am still improving while taking these calculated risks. I am not setback, I am not in a holding pattern. I am still getting better and better... and it's wonderful! ☺☻☺
I want to add a very important caution here.
Please, please do not try something like this based on my personal experience.
This is a big risk to take and should only be taken if you and your health care professional confer about it. I only made the decision to do this after I had been steadily improving for quite some time. I began very tentatively with a lot of time in between exposures at first to assess how my body was reacting. I also listen very closely to my body and, if it is having a harder day, I either wear the mask or just stay at home.
I feel it is very important to move forward in ways like this only when it is realisticly wise to do so - not just because we want to be able to. It is possible for people with MCS to be vulnerable to denial - to wanting our freedom so much that we take unwise risks.
I came across this old draft of a post I began writing back in January. It was so neat to read it again today and realise how much things have changed since then and I wanted to share.
*Note* There are many different kinds of 'masks' that people with MCS use. When I refer to a 'mask' I am talking about a small 'respirator' I wear that has a layer of activated carbon in it which can adsorb a certain amount of VOCs and chemicals. It is not tolerated by all due to the synthetic materials it is made from.
This is not one of the large respirators that have canister filters - they filter much more and are excellent for MCS from what I hear IF one can get them outgassed enough so as to not react to the respirator itself.

Here is the January 2009 post:
I now have a few select places I can go without a mask - something I thought would be forever impossible. Just yesterday I was out without mask and realised that it no longer felt terrifying like it did when I first began doing so (maybe a year ago).
I know my body and intuition well enough now to trust them. If I have the feeling that today is a mask day, then I wear my mask(s). If not, I try to trust that feeling too although it's a bit harder (scarier).
There are some places that I expect will be quite a while before I go unmasked. Grocery stores (the dreaded detergent aisle that contaminates the entire store), malls (have gone unmasked once), department stores, hardware stores, anywhere that has air 'freshener'.
Fast forward 9 months to September 2009:
I was so excited to read that old post because it is inspiring to realise just how FAST I am improving! it may feel like I am crawling along while I'm doing it, but things like this give me perspective. Only 9 months ago, I though it would be possibly years before I could go somewhere stinky like a mall or big grocery store.
I can now go to those 'dreaded' huge grocery stores, malls and department stores with no mask. (though I do not go down the aisles that have detergent, perfume, air fresheners - that would just be stupid ☺)
There are days when I can tell it would not be a good idea so I go masked but generally, I can now go those places unmasked with no lasting effects. I get a sore throat or nose - depending on whether I breathe through my mouth or nose - and I get varying degrees of brain fog still. Other than that, my reactions are almost none and my recovery time is almost immediate upon getting into clean air again.
Even one year ago, I would have a chemical 'hangover' for at least the following day if not longer. And that's if I went wearing a mask.
I can't imagine how bad it would have been without the mask. I know the recovery time was much longer if my mask was older and less effective at filtering out VOCs.
I waited a long time to post about this and here is why: people with MCS sometimes take risks like this when they are getting better and end up having it set them back.
I knew that some readers may be concerned I was taking a foolish risk. It's hard to communicate to anyone else what my relationship with my intuition is like and the decision to go places maskless could seem ridiculous and totally unsafe. I wanted to wait to post until a good deal of time had passed and I could say, with confidence, the following:

I am still improving while taking these calculated risks. I am not setback, I am not in a holding pattern. I am still getting better and better... and it's wonderful! ☺☻☺
I want to add a very important caution here.
Please, please do not try something like this based on my personal experience.
This is a big risk to take and should only be taken if you and your health care professional confer about it. I only made the decision to do this after I had been steadily improving for quite some time. I began very tentatively with a lot of time in between exposures at first to assess how my body was reacting. I also listen very closely to my body and, if it is having a harder day, I either wear the mask or just stay at home.
I feel it is very important to move forward in ways like this only when it is realisticly wise to do so - not just because we want to be able to. It is possible for people with MCS to be vulnerable to denial - to wanting our freedom so much that we take unwise risks.
May 9, 2009
Celebrating MCS Improvements Part 3

Along with all of it's many gifts, Spring has brought me many opportunities to notice ways in which my health is improving and moving forward!
With MCS, one can react to any source of VOC (Volatile Organic Compond) - even a 'natural' source such as flowers, mold, fresh cut grass, wood etc.
All of the things on this list caused very bad reactions only 2 years ago - bad enough that I had to avoid all of them. Last year I was much better than the year before but still quite restrictive however... this year is dramatically better than last year and I feel no restrictions at all to these four things listed below! This is absolutely wonderful and feels like such a gift and blessing. I'm outside for hours each day and it's so good for my soul.
Gardening: rarely, if ever, do I react to mold from soil now. I garden every day! I used to have to wear a mask and gloves. I garden maskless now but do sometimes wear gloves if my eczema is acting up.

Fresh cut grass in the neighbourhood smells fresh and lovely to me! This blows my mind since only a few years ago, the terpenes and other VOCs released from fresh cut grass felt like poison to me and I had run and close the windows if I heard anyone mowing their lawn. As long as the grass smell was in the air (often days) I had to keep the windows closed and stay inside or only go out wearing a mask.
*note* there is an interesting PDF file paper here that shares results of research done on VOCs emitted from grass - it gives the actual VOCs and amounts after specific time periods (includes formaldehyde, acetaldehyde and more! ack!).
If PDF form is a problem, you can view it in text form here (hope that link worked!)
Fragrant flowers blooming in the neighbourhood such as Lilac, Hyacinth, apple etc are enjoyable instead of making me nauseous and terribly sick (and necessitating the same frantic run for indoors and battening of the hatches as cut grass used to). What a joy to be able to appreciate a pretty, natural smell instead of feeling it's the enemy. I still don't bring fragrant flowers into the house but can envision a day when that will be possible!
Raking leaves: mild to no reaction to leaf mold (I used to get 'stoned', exhausted and incoherent).
As a wonderful added bonus, my reactions to the following chemicals have also dramatically improved. I suspect it's been happening gradually over the winter and spring is giving me the chance to notice it since I'm outside more and wanting to open windows.
When I say 'reaction' I'm also including recovery time improving.
It takes more of a substance to cause a reaction, even then the reaction is much milder than in the past and my recovery time is much shorter. Yay!!! ☺
- dryer exhaust
- lawnmower fumes
- BBQ fumes
- car exhaust
- cigarette smoke
- tar (including new roof smell - a neighbour just got a new roof)
- wood smoke
- perfume, cologne and body spray
- laundry products on people's clothing, scented products on their hair and skin (I've actually been able to meet some of my neighbours after living here for a few years!)
I get so much hope and inspiration when I catalogue these improvements!
If any readers have noticed improvements, I love hearing about them - please share them in the comments section if you'd like to.
If this post was of interest to you, you might also like:
Moving Forward... Noticing The Positive Part 1
and
Celebrating Improvements - Noticing The Positive Part 2
March 16, 2009
After Recovering From MCS, Irish Woman Puts Out Meditation CD
I'd like to share an inspiring story with you today.
Derval Dunford, an Irish beautician, was mostly housebound and unable to work due to MCS.
As part of her healing journey, she developed a meditation practice for herself that she feels played a big role in her recovery.
She has now returned to working part time as a beautician as well as running meditation classes and putting out a double CD of guided, relaxation and unguided meditation!
The CD is available here and you can listen to a sample track here (click the link just above CD TRACK DETAILS).
I have listened to the sample track and encourage you to check it out! I really enjoyed it. By the end, I felt relaxed and peaceful (something rare in my mind filled constantly with jumbled thoughts).
Here are some press articles you can read about Derval if you like.
Independent.ie
Mayo Advertiser
Sunday Business Post
You can also view my favourite article - the one in the Irish Mirror - at the Sui.ie site by scrolling down to the very bottom of this page and clicking the link mentioned in the final sentence. In this article, she says, "...I know that detoxing my mind played a big role in my recovery."
I had asked Derval how much she has recovered from MCS and she shared, "I feel I have recovered from MCS but I still steer clear of chemicals as much as possible & certainly wouldn't stay in an enclosed space for any period of time with a strong chemical smell. I use all natural products where possible. Having said that, I can go about my daily life as everyone else does, travelling on trains, planes and socialising Thank God!"
Thank you Derval for the inspiration and permission to post your words here!!!
Derval Dunford, an Irish beautician, was mostly housebound and unable to work due to MCS.
As part of her healing journey, she developed a meditation practice for herself that she feels played a big role in her recovery.
She has now returned to working part time as a beautician as well as running meditation classes and putting out a double CD of guided, relaxation and unguided meditation!
The CD is available here and you can listen to a sample track here (click the link just above CD TRACK DETAILS).
I have listened to the sample track and encourage you to check it out! I really enjoyed it. By the end, I felt relaxed and peaceful (something rare in my mind filled constantly with jumbled thoughts).
Here are some press articles you can read about Derval if you like.
Independent.ie
Mayo Advertiser
Sunday Business Post
You can also view my favourite article - the one in the Irish Mirror - at the Sui.ie site by scrolling down to the very bottom of this page and clicking the link mentioned in the final sentence. In this article, she says, "...I know that detoxing my mind played a big role in my recovery."
I had asked Derval how much she has recovered from MCS and she shared, "I feel I have recovered from MCS but I still steer clear of chemicals as much as possible & certainly wouldn't stay in an enclosed space for any period of time with a strong chemical smell. I use all natural products where possible. Having said that, I can go about my daily life as everyone else does, travelling on trains, planes and socialising Thank God!"
Thank you Derval for the inspiration and permission to post your words here!!!
*UPDATE*
1. there is a great interview of Derval on Planet Thrive (to read click here).
2. I ended up buying the CD and I love it (I have no financial interest)
March 13, 2009
Sharing Inspiration
Since my 'retreat', I haven't felt much like writing.
I've noticed that I'm very possessive of my energy - selecting carefully what I spend it on.
So I think that, for a while, I'll focus on sharing things here that are inspiring me in some way.
I'd like to share a video with you that recently made a huge impact on me.
It's a fascinating, passionate 18-minute talk given by Jill Bolte Taylor, a brain scientist.
Many years ago she had a stroke and her description of the experience was amazing and, interestingly, spiritual! At the end of the talk I felt moved, inspired, full of joyful tears and so lucky to be a human in such a miraculous body! I hope you'll check out the video.
It took her 8 years to relearn how to walk, think and talk and she sees the entire experience as a positive thing! She is a strong advocate for the possibilities of recovering from strokes - or even being stronger than before they happened.
Her stroke stimulated the right/creative side of her brain and she now sings (advocating for people to donate their brains postmortem for research) and makes stained glass brains in addition to being a scientist!
My apologies to readers who are on dial up speed who have a hard time with videos. You could check out her book or website. Although I haven't read it yet, I've heard her book is incredibly inspiring.
You can view the video here. It's on the TED site which is inspiring all by itself! There are a plethora of inspiring, interesting talks given by people in fields of Technology, Entertainment and Design (TED for short).
**Note**
There is a real brain present for short time during the video - heads up for anyone who gets super grossed out by stuff like that :)
I've noticed that I'm very possessive of my energy - selecting carefully what I spend it on.
So I think that, for a while, I'll focus on sharing things here that are inspiring me in some way.
I'd like to share a video with you that recently made a huge impact on me.
It's a fascinating, passionate 18-minute talk given by Jill Bolte Taylor, a brain scientist.
Many years ago she had a stroke and her description of the experience was amazing and, interestingly, spiritual! At the end of the talk I felt moved, inspired, full of joyful tears and so lucky to be a human in such a miraculous body! I hope you'll check out the video.
It took her 8 years to relearn how to walk, think and talk and she sees the entire experience as a positive thing! She is a strong advocate for the possibilities of recovering from strokes - or even being stronger than before they happened.
Her stroke stimulated the right/creative side of her brain and she now sings (advocating for people to donate their brains postmortem for research) and makes stained glass brains in addition to being a scientist!
My apologies to readers who are on dial up speed who have a hard time with videos. You could check out her book or website. Although I haven't read it yet, I've heard her book is incredibly inspiring.
You can view the video here. It's on the TED site which is inspiring all by itself! There are a plethora of inspiring, interesting talks given by people in fields of Technology, Entertainment and Design (TED for short).
**Note**
There is a real brain present for short time during the video - heads up for anyone who gets super grossed out by stuff like that :)
February 8, 2009
Celebrating MCS Improvements Part 2
Just over a month ago, I wrote Moving Forward... Noticing The Positive. That post was a sharing of part of how my healing had progressed over the last few years and included a few lists of things that I was able to do or be exposed to without reactions, or with greatly lessened reactions compared to in the past.
I want to keep noticing the positive and celebrating the improvements!
To anyone reading, I would really love if you shared any improvements you have noticed - no matter the size. Sharing them can serve as inspiration for others on this healing journey and as validation for our own healing.
I believe that we attract more of whatever we are focusing on and this has proven to be true in my own life. So I believe that focusing on the positive, on improvements no matter how large or small, is a crucial part of my healing journey.
So without further ado:
This week I noticed that I had bills laid out all over the kitchen counter for a few days. I remembered that only a few short years ago, I could not be in the same room as a new piece of mail or any newly printed paper! Yet here I was, spending time in this room with about 8 bills laid out - all smelling of inks and chlorine-processed paper. And I was fine. Yay!
I read a book recently from the library that smelled quite scented and also of cigarette smoke. I noticed the smell but did not react.
The result is wonderful, vibrant colour that I can adorn my walls with like the ones shown in this post.
I recently had to replace my old inkjet printer and decided on a laser one (since it's in a room I don't use I am not worried about the ozone). The result has been wonderful and totally unexpected - I don't react to the ink at ALL! In laser printers, the ink is basically bits of plastic dust fused to the paper. None of it rubs off on my hands whereas with inkjet printers, my hands reacted if they touched the ink - even after much time. *note* I wouldn't choose a laser unless I had a room to put it in that I don't spend time in.
I've been wanting to have a set of pieces on the wall to represent the chakras so I'm colouring with that theme in mind. So far I have the root and solar plexus chakras done (and for fun I have done a turtle because I recently had 2 dreams with turtles in them).
Many thanks go to http://www.mandalarbre.com for their amazing, inspiring colourable mandalas. They are all designed by Marc Bove and are copyrighted.
They have galleries there where you can see various coloured-in mandalas. It's wonderful seeing all of those vibrant colours! Media options may be watercolour paints, pencil crayons, markers, coloured pens or anything you tolerate.
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