April 22, 2011

3 Year Healing Anniversary and Blog Name Change

Three years ago, I made the decision to trust my own intuition about the ability of my body to heal from MCS.
I used EFT to reprogram some of the limiting beliefs that I had (MCS is forever, impossible to heal, incurable etc).
Almost immediately, I became more open to listening to my intuition about what could help me. This led me to try the supplement Schizandra, which helped immensely(though I no longer need it now), and also to me developing my personal style of what I call Shifting Focus. That technique, combined with avoiding negative people as much as possible and having a hobby that brought me joy, quickly brought about healing and proved to me that it was, in fact, possible for me to heal. Constitutional homeopathy has also played it's part.
About 9 months into the healing journey, I suddenly knew that it would be beneficial for me to start celebrating the improvements I was experiencing, sharing them with others so they could be witnessed.
I was still feeling a bit tentative about healing so I chose a blog name, Moving Beyond MCS, that reflected that tentative place I was in.

In celebration of 3 years of steady healing, I've changed the name of this blog from Moving Beyond MCS to Healing From MCS. The blog URL/web address is still the same so this name change should not effect any links made to this blog or any of your bookmarks.

Today there is no tentativeness within me.
I feel confident and comfortable with saying that I am, in fact, "healing from MCS"!
Over the last three years this healing has remained steady and continues to happen faster as my body gets healthier.
I have every confidence that one day I will be able to say I am healed, recovered.
I am so happy to be able to type those words and to have been able to share with you all here over the last few years.

Thank you for continuing to visit even as my posts have gotten less frequent as I am busier with having a life outside my home.
I will be posting soon about what an average week is like for me (it would have shocked the me of 3 years ago, that's for sure :).

Happy Earth Day!

March 24, 2011

Tap-Along Audio and Script for MCS by Natalie HIll

Have you come across Natalie Hill's blog EFT Tapping Techniques yet? It's such a great resource. Natalie regularly shares tap-along EFT scripts and audios at no cost.

I had been reading her blog for quite a while and had no idea she was aware of MCS until she wrote three posts in a row on the topic in the fall of 2010. Somehow it has taken me this long to finally share the links with you here!

Natalie talks about chemical sensitivities and some of the beliefs and mind body habits we often end up with in this article here: Sensitive to Chemicals?. I like how she shares that using EFT can be an empowering experience (my words).

She shares a tap along script here that uses a that takes you from 'Dumping' to 'Dreaming': Tapping Script for Chemical Sensitivity (that you could print out to use any times or to adapt to your specific situation).

And an excellent resource for those of us who do well with audio is her audio tap-along here: Tap With Me Audio for Reacting to Chemicals
As with all EFT, you can adjust any words that don't feel a perfect fit for you. :-)
What a wonderful gift Natalie has given our community by making this available for free. It's almost 20 minutes long and in in M4a format so if you have an audio player that can play those files, you can save the file and listen to it away from the computer.
In Windows you can save the file by right clicking on the link and selecting "Save Link/Target As". For Mac users, you can save by Control clicking the link and selecting "Download ... As" (I don't use a Mac so haven't tested this)

*note* For those on dial up, the file is 26.5 MB so it's big and would really slow down your system.


Not sure what EFT is or why you'd use it for MCS? Check out my past post Why EFT and What Is It Anyhow?!

February 22, 2011

EFT for MCS article by Lisa Snow

If you are interested, check out this article on Planet Thrive by EFT practitioner Lisa Snow about using EFT for MCS.
I have had sessions with Lisa by telephone and her familiarity with MCS impressed me.

EFT for MCS by Lisa Snow

You may also be interested in my past post Why EFT (and what is it anyhow?)

February 2, 2011

The Joy of Peeling an Orange - Celebrating MCS Improvements

For the first many years of having MCS, I reacted very badly to high VOC terpenes from any sources. I reacted to wood(especially coniferous like pine, cedar etc), cut grass, mint, thyme, essential oils, citrus and more.
Citrus fruit peel contains a terpene called Limonene that gets released easily into the air when the peel is broken such as when an orange is peeled. Limonene is also present in highly concentrated form in citrus 'cleaners', degreasers and solvents which, as any person with MCS knows, can cause severe reactions even in tiny amounts. It may also be used as an insecticide and pest repellent. It can be listed as the ingredient 'citrus oil' or 'orange oil'.

For many years, I could not be in a room where citrus had been peeled for many hours after the peeling. If any pieces of peel were left out, I couldn't go in the room. If the door to that room was open, I couldn't be in any adjoining room either and I reacted to the orange oil left on the hands of whoever peeled it.

As I began to heal, I was able to peel an orange under cold running water, with gloves and mask on.
In time I was able to remove the mask but still had to use cold running water and gloves and could not leave any of the peel out.

I hadn't tried it for almost a year until 2 months ago when I had a sudden craving for an orange and I decided to try peeling it like a normal person and see how I did.

Those are my hands! Peeling the orange right in my kitchen! ☺

I was fine!

What's more, I enjoyed the smell!
Also a surprise to me were the facts that I could leave the orange peel out without reacting and that I didn't react to the orange oil left on my hands.

This was all incredibly exciting to me (and still is :).
I love oranges and it's totally liberating to be able to peel one for myself, in my own home, with no ill effects! I've repeated the experiment a number of times since I first tried it a few months ago and I've been fine each time - actually enjoying the wonderfully fresh smell.


FYI
:
I believe that concentrated orange oil 'cleaners', degreasers and solvents and essential oils are not safe to use. Unfortunately they are often marketed as 'natural', 'green' and 'non-toxic'.
You can read about the health risks of Limonene here on the Skin Deep website: Limonene score - moderate hazard.

November 12, 2010

Why Is A Simple Sweater Cause For Celebration?

A simple sweater is the most recent physical proof of just how much I have healed from MCS over the last few years.
The sweater is 100% acrylic 'wool' and is dyed black.

The reason it is so exciting is because (insert drum roll) I washed it once before being able to wear it.
Once!
With just a bit of my safe-for-me detergent.
Did I mention once? :-)
A few years ago it would have been questionable whether I could detox it at all because it is very thick and dyed black - both of which can be hard to detox.
Furthermore, it was sold in a grocery store and in the past it would have taken many washes just to remove the smells from the store (laundry aisle, air freshener etc) let alone the excess dyes, finishing chemicals etc.

If I had been able to detox it enough to be safe for me in the past, it would have taken at least 16-20 washes, many of which would be using various things that people with MCS use to remove scents, chemicals, dyes etc from clothing.  Things like vinegar, baking soda, TSP, borax, milk and more.

So being able to wash this thick, black, synthetic sweater sold in a grocery store only one time with just a bit of mild detergent and be 100% okay with it - no reactions at all - is a victory to me and a wonderful sign of how much I am healing!

It's very exciting :-)
And also warm and comfy!

September 11, 2010

MCS Travel Review: The Omega Institute from an MCS Perspective

This post is a departure from my usual style of sharing MCS improvements and victories. 
If you are not considering to visit the Omega Institute and you are using a healing tools such as Shifting Focus, Amygdala Retraining or Dynamic Neural Retraining, I suggest that you either skip this post entirely or read only the 'Pros' list.



In August, I visited the Rhinebeck campus of the Omega Institute for Holistic Studies.
It was a wonderful trip and a true celebration of how much I have healed.


MCS has improved for me to the point that I had few issues on this trip, however, I am still sensitive enough that I was able to take note of the things that would have been issues when I was worse.
So instead of focusing on my own improvements, like I usually do, in this post I will share lists of Pros, Cons, Tips and list of Possible Issues by Building.
I hope that it will be helpful for others with MCS who may be considering attending the Rhinebeck campus of the Omega Institute.



Pros

  •  Other than the parking lot, the entire campus and lake are free from motorised vehicles.  For internal staff transport, bicycles or battery powered carts are used.  On big arrival and departure dates, a minivan was used a few times to transport items from the parking lot to accommodation - but only when they were too large to take on the carts.  The small country road that runs through the middle of the campus is extremely low traffic.  I saw about one vehicle an hour at most.
  • I was pleasantly surprised at how fragrance-free most of the staff and many of the guests were.  On over 90% of the staff, I didn't smell a single scented product.  Overall, the guests were far less scented than most people I encounter.
  • Linens, towels etc as well as staff clothing are cleaned with fragrance-free detergent and no fabric softener.  This was awesome because it meant that none of the staff smelled 'like laundry'.  Due to the brilliant way that wastewater is treated at this location, the laundry products used need to be as free from chemicals as possible.  As of August, 2010, there was no fabric softener used and the detergent was Seventh Generation Free and Clear.  I would check that this is still the case if it is an important factor for you.
  • There is only one smoking area on the entire campus.  Other than that, the entire campus, including camping areas and trails, is smoke-free.  I only smelled smoke once, distantly, the whole time I was there.
  • There are no fires or camp stoves allowed in the camping areas.  Also not allowed is the burning of mosquito coils, torches or similar.
  • The Dining Hall had so many different food options available that many food sensitivities could be accommodated.  Gluten free bread was always available (but not a dedicated GF toaster).
  • The food was delicious, plentiful and healthy, with many organic options.  The herbal teas are Numi brand that does not have 'flavour' as an ingredient.  Available sweeteners include stevia, agave, honey and raw sugar.  There are herbal tea, tea, milk, coffee, water and unsweetened juice available at every meal.
  • There are many different drinks and snacks available at the cafe.  many of them cater to different food sensitivities with gluten free and sugar free options.
  • For those who need meat due to health issues, there are meat options available at the cafe.
  • You do not need to make a purchase to sit in the cafe.
  • Free internet access in cafe with 3 computers available for guests.

Cons

  • The most important issue for many will be that, in early spring, the grounds are treated with pesticides to kill ticks.  I know myself well enough to know that, by August, I would be totally fine with this so I didn't bother asking what was used.  If this is an issue for you, I would suggest doing more research into what pesticides are used, how long it takes them to degrade etc.
  • There is not an enforced fragrance-free policy.  Some staff and guests did wear perfume or essential oils.  Other guests will smell of whatever laundry products they normally use.  This could be effected by what workshops are happening that week.
  • Some people use bug spray and sunblock.
  • Hilliness.  If fatigue or exercise are issues for you, this could be a big challenge.  If you are camping, the 'lake camping' involves less hill climbing to get around than the appropriately named 'hill camping'.
  • The bookstore, which is full of wonderful things, smells very strongly of incense, which is sold there.  I didn't ask if they also burn it there but it definitely smelled as though they do.
  • Water is chlorinated. Even the drinking water, which is well water, tasted chlorinated to me.
  • Flourescent lights are used in various buildings.
  • Once a week, the grounds are cut with lawnmowers and weedwackers that have exhaust fumes.  You can ask what day this happens and plan your visit around it if needed.  It's also an option to spend time in one of the safe-for-you buildings or on the trails while it is happening.
  • For those with extensive food limitations, protein options are mainly soy, legumes, beans, dairy, nuts or eggs.  You can get meat dishes at the cafe if that is your only tolerated protein source.


Tips
  • You can request to be matched with an intake staff who is not scented.  You can also call ahead of time and request that there be a fragrance-free intake person on the day of your arrival and can then ask for them by name.  If they try to tell you that all of their staff are unscented, I can tell you it's not true. 
  • You can request that your intake be done outside of the Main Office building (ask for the side further from the parking lot).
  • If you encounter someone smoking, burning mosquito coils or torches or using a campstove, you can ask them to stop, informing them that those activities are not allowed.  If this doesn't work or you aren't comfortable doing it, you can let a staff person know it is happening and request that they put an end to it.
  • They do have some degree of awareness about chemical sensitivities so if someone in your workshop is wearing something that bothers you, you can likely have it addressed.
  •  If you have food sensitivities, don't forget to check the counter along the wall at the top of the room.  It often had special things like plain grains (rice, quinoa, millet, amaranth) ad unseasoned vegetables and legumes as well as fruit.
  • To avoid being stuck in line near possibly scented people at meals, you can come early.  The doors never opened early for breakfast but they did for all of the other meals.
  • There is a fridge for guests in the staff lunchroom.  You can ask for containers to fill with food from the buffet and then come back later to eat what you set aside.  Or you can bring small amounts of your own safe food.  Labels are with tape and permanent marker (smelly) so you may want to write your own labels ahead of time to avoid having to use the marker.
  • You can use the Virtual Tool option on their website to see 3D views of the inside of many of the buildings. (click on the orange triangles)
  • If you are on an R&R Retreat, you may like to plan your visits to buildings or the lake to coincide with the times that the main workshops are happening.  That way, there will be far less people there.


Possible Issues by Building (I will put 'unknown' if I didn't test it out)

Main Office/Registration: bathroom has either air freshener or fragrance oil sticks, staff may be scented.
Lake Theater: excellent 
Stillwater Yoga Pavilion: unknown
Omega Center For Sustainable Living: unknown
Bookstore: very bad incense fumes - most things bought there would be permeated with the smell.
Cafe: Wi-fi internet access, fumes from roasting coffee at times, cooking odors.  Once I smelled incense or sage (if it happens, you can ask them to stop). At other times, I found it quite good.  Hardwood floors.
Guest Services (below Cafe):  quite good
Ram Dass Library: mostly carpeted but I can't judge how bad it was because I didn't react to it.  Could not smell 'carpet' smell.  Bathroom awful - had fragrance oil sticks.  I complained so this may have been changed.  Some fumes from bathroom do travel upstairs but there are a few little balconies up there you could take books out onto.
Main Hall: carpet, padded gym mats stacked at sides of room (or spread out depending on workshop).  I was fine with both of these so am not able to judge how bad they would be for others.  I could not smell 'carpet' smell.
Dining Hall: excellent.  hardwood floor, open windows, option to take your food outside to eat either on the deck, at picnic tables or anywhere you want! 
Movement Studio: unknown
Sanctuary: unknown (but from the pictures it is carpeted).
Wellness Center: unknown but I suspect essential oils and possibly incense and/or moxibustion.  Spa and facial chemicals.
Sauna: unknown (you could ask what kind of wood was used, what is used to disinfect)
Children's Center: unknown
Dorms and Cabins: unknown
Tent 'Cabins': unknown (but there definitely could be mold)
Hill Camping: leaf mold, sites on a slant
Lake Camping: few or no places to attach a tarp
Lake: other people's sunblock (but I found much less sunblock smells than a regular beach)
Outdoors in General: mostly excellent but avoid woody areas if you react to leaf mold.

Bathrooms: at times, many of them had a smell that I later found out was fragrance oil sticks even though I didn't see any in evidence.  I didn't test the soap because I think it was scented.
Lake bath house: I think it had fragrance oil sticks in a closet.  Smells from guests' shower products, personal care products, hair products etc.  Glass doors on showers (so this may be a better shower option if you react to the vinyl curtains at the Hill bath house).
Hill bath house: Smells from guests' shower products, personal care products, hair products etc.  Heavy vinyl shower curtains (they were old and I didn't notice VOCs but could be an issue for some).  This bath house may be a better option for you if you react to fragrance in the Lake bath house.  *note* this bath house has many more open windows than the Lake bath house.  I found it much better.

August 28, 2010

Week-long Trip A Huge Success - MCS so much better!

Glorious view from the scenic Taconic State Parkway  - the photo doesn't do it justice.


I am back from a wonderful week long trip to New York State.
I will write a review of the Rhinebeck campus of the Omega Institute from an MCS perspective soon but if you'd like to read a bit sooner, you can view this post on my art-focused blog: Back From Omega Institute Retreat - Wonderful!

The trip was a huge success for me from an MCS standpoint.  I am so excited to have been able to go on such a big journey and not get sick!  It was totally liberating and joyful to interact with all sorts of people as myself instead of as a) a sick person or b) a person wearing a mask.
After returning home, I realised that I had spent time with people, enjoyed their company and not even thought of mentioning MCS to them!  It was/is SO COOL!

I will also be writing a review of the Bed and Breakfast I stayed at on the way there and back.  They are more MCS aware than most (though they have many areas they could improve).

Since returning I have no desire at all to sit in front of the computer so it may take me a while to get to those reviews.
The air here is whispering of autumn and I want to be outside in it!



Drawing done at Omega after an Energy Medicine healing session

August 11, 2010

I'm Going On A Trip!


I'm very excited to have healed enough that traveling is now possible!

I am going to the Omega Institute next week (I wrote a bit more about it on my other blog here).

On the way there and back I will be staying for one night at a Bed and Breakfast that is MCS aware.  It has been used by patients of Dr. Sherry Rogers.  I will post a review of both the B&B and the Omega Institute some time after I get back. 

I'm also working on a post that has tips on having an MRI when you have MCS (I had 2 in June).  Writing is slow this summer so I'm not sure when these posts will happen but hopefully soon!

My summer is going well so far.  I am loving spending time in my gardens and morning walks and bicycling.
I am happy to be able to bike in traffic without reacting and ride on city buses!

I hope you are doing things you enjoy this summer! 
:-)