Hair Salon Visit! A MCS Healing Milestone

Now that life is so busy, I have been posting very infrequently.  I wanted to let you know that my recovery from MCS (Multiple Chemical Sensitivities) is still progressing well.

A few weeks ago I got my hair cut in a hair salon for the first time since before MCS got severe in 2004!
It felt like a huge milestone on my healing journey.  No mask of course.   :-)
Here's a picture I took before going in:

I brought my own shampoo and conditioner but other than that, I made no accommodations at all to MCS.
There were people around me getting highlights and it was wonderful to be able to just relax, knowing that my body can handle that kind of exposure now, with no ill effects.

My appointment took 1 hour and 15 minutes because my hair is very thick and long.
I wore their cape, sat in their chair, was surrounded by the products used by the salon... and I was just fine.  :-)  No reactions while there or afterward!

It was so exciting to feel so 'normal' and be able to do a positive, self-esteem boosting thing like getting a nice hair cut.

For those who are not at this stage yet, and want a hair cut, many towns have hairdressers who make house calls for people who are less mobile.  It generally isn't advertised.  I have found that service by calling various hair dressers or seniors residences and asking if anyone has heard of someone who gives cuts at your house.  If you have a yard or balcony, they should be able to do the cut outside so that you don't need to bring them into your home (if you would react to scents on them).
If you are lucky enough to live in a city that has an eco-friendly or chemical-free hair salon, they may be an option for you.  Check out this great article about that type of salon on Planet Thrive here: Less Toxic Hair Salons

MCS Success Photos

A few weeks ago, I was sitting at home after having been out at Walmart and also the grocery store (both with no mask) and I had one of those surreal moments that I have sometimes since being on a healing journey.
I suddenly looked around and was aware of all of the things I was sitting near that I couldn't have even been in the room with without reacting to before I began healing from MCS. Even after I had begun healing but was still early on, many of these things caused reactions and I had to avoid them. I am now so completely nonreactive to them that it feels normal to be around them and most of the time I forget they were ever an issue!

I took some photos that day and tried to identify all that I was now okay with.

Here are a few photos, followed by a list of what is shown - all of the items listed are signs of healing, signs of success! Keeping a tidy house is not one of my skills so please excuse the mess :-)

• acrylic yarn bought that day at Walmart.
• crochet hook bought that day at Walmart - it didn't occur to me to wash it.
• toilet paper bought at grocery store in same aisle as laundry products (the store smell on the plastic would have been a big issue in past).
• computer and printer in same room as me. I used to have them in another room with the cords for keyboard and monitor coming through wall into my room. They've been in the same room as me for many months now.
• table with wood exposed (used to be entirely sealed in foil due to terpenes in wood. the glass top on it now is just to protect it from cat claws - not for MCS reasons).
• package of canvas boards on table is from Michaels craft store, a very stinky place.
• you can just barely see the books on the tables - 1 new and 1 from library (inks, other people's scents etc).
• exercise ball
• what is not shown is my body and hair. I no longer need to shower or wash my hair after being out - even after hours of browsing Walmart! I simply wash my hands and change my clothing.
• the pants I'm wearing were ones I was able to wear after just one wash with my safe soap. no detox necassary.
  

Also, though you can't see it in the above photo, I was sitting a few feet from a pair of brand new boots. New leather, new rubber, new everything. They didn't bother me at all - either to be near or to wear (though sadly I did return them because the left one was too tight for some reason :)
In the left lower corner of the below photo you can see the fabric of the chair I'm sitting on. I left that in to show how nearby the boots are. I shopped for boots at almost every store I could think of, trying to find the right pair. I didn't wear a mask in any of the stores. The new shoe smell was very strong but it didn't bother me.

Week-long Trip A Huge Success - MCS so much better!

Glorious view from the scenic Taconic State Parkway  - the photo doesn't do it justice.

I am back from a wonderful week long trip to New York State.
I will write a review of the Rhinebeck campus of the Omega Institute from an MCS perspective soon but if you'd like to read a bit sooner, you can view this post on my art-focused blog: Back From Omega Institute Retreat - Wonderful!

The trip was a huge success for me from an MCS standpoint.  I am so excited to have been able to go on such a big journey and not get sick!  It was totally liberating and joyful to interact with all sorts of people as myself instead of as a) a sick person or b) a person wearing a mask.

After returning home, I realised that I had spent time with people, enjoyed their company and not even thought of mentioning MCS to them!  It was/is SO COOL!

I will also be writing a review of the Bed and Breakfast I stayed at on the way there and back.  They are more MCS aware than most (though they have many areas they could improve).

Since returning I have no desire at all to sit in front of the computer so it may take me a while to get to those reviews.
The air here is whispering of autumn and I want to be outside in it!

Drawing done at Omega after an Energy Medicine healing session

I'm Going On A Trip!

I'm very excited to have healed enough that traveling is now possible!

I am going to the Omega Institute next week (I wrote a bit more about it on my other blog here).

On the way there and back I will be staying for one night at a Bed and Breakfast that is MCS aware.  It has been used by patients of Dr. Sherry Rogers.  I will post a review of both the B&B and the Omega Institute some time after I get back. 

I'm also working on a post that has tips on having an MRI when you have MCS (I had 2 in June).  Writing is slow this summer so I'm not sure when these posts will happen but hopefully soon!

My summer is going well so far.  I am loving spending time in my gardens and morning walks and bicycling.
I am happy to be able to bike in traffic without reacting and ride on city buses!

I hope you are doing things you enjoy this summer! 

:-)

2 Year Update: MCS Still Improving!

It's been just a few months longer than 2 years now that I have been steadily getting better from MCS.

I know that to a newcomer with MCS, the idea of it taking years to get better could seem disappointing... but I'm just fine with it.  I'm so grateful to be healing and am trying to be patient with the rate at which it's happening.  So when I look at how FAR I've come in 2 years... I say YAY!!!

My life has changed so dramatically that I am daunted by even trying to put it into words.
For those who have or have had severe MCS, perhaps this update list will capture it.  A list full of things that I once would have thought to be impossible!

My mask is lonely... it almost never gets used.
When I go out, if I remember to bring it, I use it in bathrooms that have strong air freshener.  If I forget, I use the bathrooms anyway!  And I'm okay.

Going out for dinner is no big deal now from an MCS standpoint, though I still have aftermath due to food sensitivities.

I close my windows if my direct next door neighbour has their dryer or lawnmower going or if neighbourhood woodsmoke is very strong but otherwise they can be open often.

New clothing takes only a few washes with just laundry soap before I can wear it (as opposed to tons of 'detox' washes with special things like vinegar, baking soda, TSP, milk, borax etc etc).

Driving in a 4 year old car that still has new car smell is something I give no thought to - zero reactions.  No mask needed.

Car exhaust, lawnmower fumes, air freshener, BBQ, cigarette smoke, dryer exhaust, essential oils,  perfume/cologne, woodsmoke, paint, new roof smell, road tarring, carpets and much more bother me less and less.  Passing exposure to any of these causes no reaction except distaste.  Prolonged exposure to most of those causes only slight reactions and very fast recovery time.

I can spend time around regular people who are covered head to toe in scented products.  I don't enjoy the smell at all.  I do find it offensive and distracting.  But my physical adverse reactions to it are far less and this has freed me up so much socially.

I can't really express just how different and wonderful it is to do something as simple as smile at a stranger in a store or doctors office!  Those small bits of human interaction are amazing and were totally interfered with my wearing a mask.

I know there are so many little things I am forgetting because the changes and improvements are becoming 'normal' to me.  I'm trying to relax and let myself just enjoy the ride, the journey, instead of feeling the need to catalogue or keep track of all of the improvements.
:-)

Lilacs Smell Good Again!

The lilacs are in bloom in southern Ontario - an event that used to keep me inside at this time of year.  They used to smell very strong to me and I would get bad headaches and brain fog if I was exposed for more than a few seconds.  With MCS, one can react to VOCs from any source - even naturally occurring ones in plants and flowers.


Now lilacs smell wonderful to me!  I was out gardening for a few hours today and the wind was blowing a neighbour's lilac blossom scent my way.  I loved every minute of it and had no negative reactions  :-)
It is such a joy for me to be able to enjoy these natural smells again.
I've also been enjoying it when fresh cut grass smell wafts my way - something that a few years ago I would have thought impossible due to the high terpene level in grass.

I'm not yet at the point where I'd bring strong flowers like lilacs, hyacinths or lily-of-the-valley inside though I do bring some more mildly scented flowers in.

What flowers do you love?

Do you react to natural sources of VOCs?

MCS Improvements Part 9: MCS and Magazines - not usually a good mix but...

The title says it all!
For most of my journey with MCS, I couldn't even be in the same room as a magazine, flyer or newspaper without negative reactions.
To my delight, I've noticed that those reactions are getting less and less lately.
I can read through most newsprint flyers or newspapers in small doses with no reactions although I dislike the smell.
I can also look through glossy magazines for longer periods of time - longer than newsprint and much longer than was possible even 6 months ago!

This is particularly exciting to me because I love making collages which magazines, seed catalogues etc are great for.

Here's a happy-that-it's-spring collage I did recently:

Feeding The Sacred Spark

I've been thinking, for a while now, of how much I'd like to have more positive focuses in my life so I've decided to take the plunge and participate in this neat creativity challenge.
I love the art of the woman who runs CED and have been following her blog for many months, feeling inspired each time I read.  Her name is Leah Piken Kolidas and she provides monthly themes to help creative juices flow.
It's a very laid back 'challenge' and basically any participant can take part in whatever way feels right to them.

I love it!

I know how much healthier and happier I feel when I am creative and I think being part of this will motivate me to do it more often.

I've started a new blog called Divinity Withinity to be my new 'home' where I share creativity and celebrate things I enjoy - unrelated to illness.
A place to have fun, be silly, and connect with the sacred spark inside of myself - the spark that flares into a flame when in 2 situations - when I am in nature and when I am being creative.

I believe it can be healthy to break free from identifying too deeply with a label or diagnosis and this step feels like a positive one on my healing path.

So if you're a person who enjoys sharing of creativity or artsiness, please feel free to check out the new blog!  (I will still post MCS improvements in this blog.)

What are some non-MCS related positive things that are in focus in your life?
I'd love it if you shared in the comments area. 
☺

please note: the new blog will have photos so for dial up users, it may be slow to load.  I've tried to keep this MCS blog low on photos and videos for that very reason but I really want to celebrate on the creativity blog by sharing photos.  I apologise for any inconvenience it may cause.

MCS Improvements Part 6: Tracking Over 3 Months (3 dentist appts)

I had a neat opportunity to track improvements recently.

In 3 months, I went to the dentist 3 times - with each visit almost exactly one month apart.

The dentist is a number of hours away and each trip in total took over 8 hours at the shortest.

on the last 2 visits, I also went out for lunch at the same restaurant after the dentist.


I found it much easier to assess the level and rate of improvement with those visits compared to somewhere I go once or twice a week around town.

Exposures:

same hours long drive there

in same newer, smelly vehicle

inhaling the same exhaust fumes

walking through the same parking garage,

air freshenered elevator,

cleaning producted bathroom,

chemical-filled dentist office,

scented serving person, carpeted restaurant

eating the same delicious but non-organic food

same hours long drive home

in same newer, smelly vehicle

inhaling the same exhaust fumes

Reactions:

with each trip my reactions were WAY less than the one before, my recovery time was faster (with trip 3 recovery time being none at all really because I pretty much didn't react all day!)

I should put that in it's own sentence.

I am improving fast enough that although Trip 1 felt like hell and Trip 2 still felt like an ordeal (though not a hellish one), Trip 3 produced pretty much NO negative reactions and therefore didn't require any recovery time.

 I was slightly tired a bit after eating which happens to me anyway when I digest a large meal.  I still disliked the various things I smelled but did not physically or cognitively react to them.

I also hade slightly sore shoulders which came up about 2 hours after getting home.

After finally washing perfume and etc fumes out of my hair that went away.

If someone had told me 3 years ago that this would ever be possible for me, I would not have believed them.

In Other Improvement News:

In other news, going out to stores, malls, etc with no mask is now the norm for me.  I carry a mask in case I need to use a washroom that is ridiculously air freshenered but rarely use it.
The reactions from those 'out in public' places are lessening steadily and recovery time is almost instant after getting home.
It used to be that recovery time couldn't even start until I had showered and changed into clean clothing but now it begins the second I am in cleaner air.

Celebrating MCS Improvements Part 5: Healing Faster and Faster!

My improvements are happening very fast now.

Every week I seem to have things I can tolerate (or am reacting less to) that I could not just one week before. It's so exciting!

I have now had a number of weeks in a row where I have gone in public with no mask for hours at a time each week - often twice a week - and each time my reactions are less and less!

Last week I went for a medical appointment/exam in a regular clinic that took over 90 minutes total (including wait time) with no mask, then shopping for over 2-3 hours afterwards.
I did take a blanket for over the exam table and asked for a disposable paper robe instead of laundered one.  I was bothered most by the flourescent lights - far more than by chemicals.
My reactions while out were mild and I recovered as fast as it took me to shower after getting home.

I recently went ot Walmart without a mask (something I thought would never happen).
It was not a pleasant experience but far better than it would have been in the past.  I have been to Zellers (for non-Canadians that is like a small version of Walmart - not quite as stinky but still awful) many times maskless now and am fine.  Haven't yet done harware stores.

Yesterday I was in various grocery stores for 2 hours, then in a MALL, amidst the holiday shopping craziness, for about an hour and a half, all with no mask.
I came home, showered, ate and was well enough to go out to a cafe that was having free tarot readings!

With these outings I get slight sore throat and slight brain fog and sometiems some fatigue but it all passes so fast and is SO mild compared to how it used to be. I used to have more symptoms than those and far worse. A few years ago an outing maskless even a fraction of that length would have had me sick for weeks or more. And each time I did one would have taken longer to recover.

My favourite thing is being able to smile at people :-)
:-)

Celebrating MCS Improvements Part 4: Going Maskless

It seems like a very long time since I have posted on the blog! I've been living in clean air in the woods for the summer and it's been so healing... but more about that another time :-)

I came across this old draft of a post I began writing back in January. It was so neat to read it again today and realise how much things have changed since then and I wanted to share.

*Note* There are many different kinds of 'masks' that people with MCS use. When I refer to a 'mask' I am talking about a small 'respirator' I wear that has a layer of activated carbon in it which can adsorb a certain amount of VOCs and chemicals. It is not tolerated by all due to the synthetic materials it is made from.
This is not one of the large respirators that have canister filters - they filter much more and are excellent for MCS from what I hear IF one can get them outgassed enough so as to not react to the respirator itself.



Here is the January 2009 post:

I now have a few select places I can go without a mask - something I thought would be forever impossible. Just yesterday I was out without mask and realised that it no longer felt terrifying like it did when I first began doing so (maybe a year ago).

I know my body and intuition well enough now to trust them. If I have the feeling that today is a mask day, then I wear my mask(s). If not, I try to trust that feeling too although it's a bit harder (scarier).
There are some places that I expect will be quite a while before I go unmasked. Grocery stores (the dreaded detergent aisle that contaminates the entire store), malls (have gone unmasked once), department stores, hardware stores, anywhere that has air 'freshener'.

Fast forward 9 months to September 2009:

I was so excited to read that old post because it is inspiring to realise just how FAST I am improving! it may feel like I am crawling along while I'm doing it, but things like this give me perspective. Only 9 months ago, I though it would be possibly years before I could go somewhere stinky like a mall or big grocery store.
I can now go to those 'dreaded' huge grocery stores, malls and department stores with no mask. (though I do not go down the aisles that have detergent, perfume, air fresheners - that would just be stupid ☺)

There are days when I can tell it would not be a good idea so I go masked but generally, I can now go those places unmasked with no lasting effects. I get a sore throat or nose - depending on whether I breathe through my mouth or nose - and I get varying degrees of brain fog still. Other than that, my reactions are almost none and my recovery time is almost immediate upon getting into clean air again.
Even one year ago, I would have a chemical 'hangover' for at least the following day if not longer. And that's if I went wearing a mask.
I can't imagine how bad it would have been without the mask. I know the recovery time was much longer if my mask was older and less effective at filtering out VOCs.

I waited a long time to post about this and here is why: people with MCS sometimes take risks like this when they are getting better and end up having it set them back.

I knew that some readers may be concerned I was taking a foolish risk. It's hard to communicate to anyone else what my relationship with my intuition is like and the decision to go places maskless could seem ridiculous and totally unsafe. I wanted to wait to post until a good deal of time had passed and I could say, with confidence, the following:



I am still improving while taking these calculated risks. I am not setback, I am not in a holding pattern. I am still getting better and better... and it's wonderful! ☺☻☺




I want to add a very important caution here.
Please, please do not try something like this based on my personal experience.
This is a big risk to take and should only be taken if you and your health care professional confer about it. I only made the decision to do this after I had been steadily improving for quite some time. I began very tentatively with a lot of time in between exposures at first to assess how my body was reacting. I also listen very closely to my body and, if it is having a harder day, I either wear the mask or just stay at home.
I feel it is very important to move forward in ways like this only when it is realisticly wise to do so - not just because we want to be able to. It is possible for people with MCS to be vulnerable to denial - to wanting our freedom so much that we take unwise risks.